Word Project: Day Twenty One

Ok.

No other words today. Just mine. 

This is important. Paisley’s birthday is in 9 days.

That means that today was the day, 4 years ago, that I was told that I would never take my daughter home from the hospital alive. Which is pretty horrendous. Moments like that become life defining. That’s where life becomes divided into “before” and “after”. 

65. I have 65 photographs of my daughter. Which almost sounds like a lot, except that those 65 are all I will ever have. EVER. No first smile, no first foods, no first day of school, no first date. That’s it. Just 65 pictures for a lifetime of love, loss and heartache. I got to spend time with my daughter only after she passed. 

Losing a baby is not only soul shattering, but expensive. But through the service offered by Heartfelt, a charity comprised of professional photographers, I have 65 beautiful, irreplaceable photographs that were taken with the utmost of love, care and respect, by someone who stepped aside from their own family, to volunteer their time so those photos could be gifted to me, without charge. It is the greatest gift I will ever be given.

Sadly, those 65 photos are an awful lot more than what some people have. Some families that face this devastating loss are left with nothing. They go home with empty arms, broken hearts and no recorded memories. It might be because they didn’t know about the service, or because it doesn’t exist where they are. Both need to change.

Which is why, I am asking you to take a moment to look up Heartfelt. This is an Australian charity set up by a man with a huge heart, who in my darkest time showed me personal kindness. I didn’t know they existed until I had to. Know about these people, because there could be a time where someone close to you needs them. Support them if you can, by way of donation to this appeal so that more families who need this service can be assisted. Because even a small amount will help. And what this charity does is priceless. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

#purpleforpaisley

Advertisement

Word Project: Day Twenty

This song was playing on the radio seemingly constantly around the time Paisley was diagnosed, born and buried. It’s still a melody that I associate with the long drives to the hospital, to the bitter cold and the beautiful sunsets, and the time  when I could feel the axis of my world change indefinitely. The lyrics were hauntingly perfect to me.

Florence + The Machine

Never Let Me Go

Looking up from underneath

Fractured moonlight on the sea

Reflections still look the same to me

As before I went under
And it’s peaceful in the deep

Cathedral where you cannot breathe

No need to pray, no need to speak

Now I am under all
And it’s breaking over me

A thousand miles down to the sea bed

Found the place to rest my head

Never let me go

Never let me go

Never let me go

Never let me go

And the arms of the ocean are carrying me

And all this devotion was rushing out of me

And the crashes are heaven for a sinner like me

But the arms of the ocean delivered me
Though the pressure’s hard to take

It’s the only way I can escape

It seems a heavy choice to make

And now I am under all
And it’s breaking over me

A thousand miles down to the sea bed

Found the place to rest my head

Never let me go

Never let me go

Never let me go

Never let me go

And the arms of the ocean are carrying me

And all this devotion was rushing out of me

And the crashes are heaven for a sinner like me

But the arms of the ocean delivered me
And it’s over

And I’m going under

But I’m not giving up

I’m just giving in
I’m slipping underneath

So cold and so sweet

And the arms of the ocean so sweet and so cold

And all this devotion I never knew at all

And the crashes are heaven for a sinner released

And the arms of the ocean delivered me

Never let me go

Never let me go

Never let me go

Never let me go

Deliver me

Never let me go

Never let me go

Never let me go

Never let me go

Deliver me

Never let me go

Never let me go

Never let me go

Never let me go

Deliver me

Never let me go

Never let me go

Never let me go

Never let me go
And it’s over

(Never let me go, Never let me go)

And I’m going under

(Never let me go, Never let me go)

But I’m not giving up

(Never let me go, Never let me go)

I’m just giving in

(Never let me go, Never let me go)

I’m slipping underneath

(Never let me go, Never let me go)

So cold and so sweet

(Never let me go, Never let me go)

https://youtu.be/zMBTvuUlm98

Word Project: Day Fifteen

All my pregnancies have been different. But at some point during each of them, I read the same book. A bizarre superstition. I adore this book. It has become so sacred to me, that now I feel like I shouldn’t even read it unless I’m pregnant. And somehow, it’s themes of love and grief and time and loneliness have become even more poignant in the wake of her death. 

The Time Traveller’s Wife

“It’s hard being left behind. (…) It’s hard to be the one who stays.”

– Audrey Niffenegger 

Word Project: Day Fourteen

Last night, I cried, suddenly, during dinner. I don’t want to be around me right now, so I can’t understand why anyone else does. And that makes me cry at random, unexplainable, inappropriate times. 

But as I sat with silent tears streaming down my face, my two living daughters, noticed my hurt, and reminded me just how phenomenal these children are.

My eldest, who has just turned six, asked me if I was sad about Paisley. 

When I said yes, she excused herself from the table and disappeared upstairs. She returned with a framed photo of her sister, a soft toy bunny that was given to her and sits with that photo, and a statue of a teddy bear ballerina Angel. She set them up on the table for me to look at and then gather her pencils and paper and spent the next twenty minutes drawing me a picture. 

My youngest, who is just shy of three, gave me her puppy to cuddle. “Puppy” is her comfort toy. Puppy was, in a former life, pink. Puppy is now a disturbing grey, and currently has a black eye from her owner dripping back jelly bean slobber all over her. Puppy does not smell pleasant. Puppy gets washed at least twice a week and is becoming frighteningly threadbare. But Puppy is the most special thing in the world to her. We go nowhere, ever, without puppy. Puppy comes to dancing lessons and sits on my lap to watch. Puppy gets wet at swimming lessons from putting her toys in the water. Puppy is tucked under her arm as she sleeps right now. Puppy, is, above and beyond anyone, her best friend. And when I was sad, she made the biggest gesture she could, and let me cuddle Puppy.

Neither of them were alarmed by my tears. They were worried for me but not scared. At just six and two years old, they know that this pain and sadness is human. They didn’t ask me to stop. They didn’t ask me to explain. They just accepted that sometimes mummy gets sad. They know they are safe and loved through that sadness. They know that that sadness comes from a great love. They are accepting of my grief more than most adults would be.

These two small humans, they are remarkable. And their empathy is off the charts. These tiny little people say hello to their sister every time we drive past the cemetery, which is most days. They think nothing of saying their sister’s name, or acknowledging her absent existence in our world. 

My eldest and youngest daughters, who will live and love and grow and grieve for a sister they didn’t know, will be incredible because of her. Her death is a part of them, and in a magical way, it’s a breathtakingly beautiful part. 

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Thirteen

I’m addicted to your light 

Beyoncé

Halo 

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Twelve

I talk about her still, I’ll talk about her always. She is my daughter and she always will be. She has a huge part of my heart. I worry that people will wonder why I’m still talking about her after all these years. I worry that they are right. I worry that I shouldn’t be. I worry that I should let her go. And I worry because I can’t. I worry that it’s not ok that I am not going to let her go. 
The Whitlams

Keep The Light On

We stumble into each other’s lives and we knock some things over

Try not to make a sound

Each time you reach out, a new shout or shine-on

We run in and fall out, fumble around for the key
I’ll always keep the light on for you

You try so hard to be alive

What else can you do, but close your eyes

You can’t see the beautiful way when you’re burning so bright

always keep the light on for you

You try so hard to be alive

What else can you do, but close your eyes

You can’t see the beautiful way when you’re burning so bright

Your halfpenny eyes smile like a fire-sale

Everyone’s a suspect, the horses won’t move up the rail

Your sadness, a thief, waits in the hallway

With mail on the floor and 2 birds in the chimney

http://youtu.be/UbM7ZPFchcY

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Eleven

I thought I’ve been doing ok this month. I haven’t. I thought I would be doing enough emotional clearence by doing this project. It’s not enough. I thought I would get through most of this month without bursting into tears at the dinner table, or crying myself to sleep. I’ve lost count of how many times I’ve cried in the last few days. I thought I wouldn’t need to sit on the shower floor and scream. But I do. Because, just because it’s been a few years, and just because I’ve done this before, doesn’t mean that this year is any easier. And hiding from it, or believing it will be different, it’s not helping me. This month, she is on my mind every second, every day. This month, everything hurts profoundly. This month. This month everything is about her. This month all the words are about her. 

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Nine

I still find it hard to fathom how strong and overwhelming the desire to hold my baby is. I miss how soft and smooth her forehead was, how tiny her toes were, how she felt curled up in my hand, nestled in under my chin. Some days all I want is to see her again. The person who touched my soul in a way no one else ever will. The person responsible for so much of who I am, who is completely irreplaceable, and the person I long for most.

Kodaline

All I Want
All I want is nothing more

To hear you knocking at my door

‘Cause if I could see your face once more

I could die a happy man I’m sure

When you said your last goodbye

I died a little bit inside

I lay in tears in bed all night

Alone without you by my side

But if you loved me

Why’d you leave me?

Take my body

Take my body

All I want is,

And all I need is

To find somebody.

I’ll find somebody like you.
Oh oh

So you brought out the best of me,

A part of me I’ve never seen.

You took my soul and wiped it clean.

Our love was made for movie screens.

But if you loved me

Why’d you leave me?

Take my body,

Take my body.

All I want is,

And all I need is

To find somebody.

I’ll find somebody.
Oh

If you loved me

Why’d you leave me?

Take my body,

Take my body.

All I want is,

And all I need is

To find somebody.

I’ll find somebody like you.

Oh

https://youtu.be/mtf7hC17IBM

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Eight

Some days are about surviving and nothing more. About being ok with being only just ok. About being alright. 

Adam Merrin

Still Alright 

When everything you have goes awayYou realize that nothing means a thing

(And) everything you thought was a big deal 

Now you see it all and what is real
When all you have just falls apart

Nothing seems to work out right, you’re trying

And you’re still alright

yeah, you’re still alright

yeah, you’re still alright

yeah, you’re still alright
When everything starts to feel the same

Everyone around you seems to change

You went along with me when things weren’t right

And when the morning slowly fadels to light

When all you have just falls apart

Nothing seems to work out right 

You’re trying
And you’re still alright 

https://youtu.be/ELRvYcdLTuE

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 

https://www.mycause.com.au/page/127880/paisleys-4th-birthday

Word Project: Day Five

Catch up on my June Word Project….

Day One

Day Two

Day Three

Day Four

Day Five….

My oldest daughter takes her middle name from this artist. This was a song that I had already loved for a long time, and then became a motto for the days that I only just survived. For me it represents the passage of time, and how very slowly, and how very quickly it passed by without her, all at once. How some days there was nothing good, but nothing as horrible as others. Some days, many days, were nothing but ok. 

Emiliana Torrini 

Today Has Been Ok

Friends tell me it’s spring

My window show the same

Without you here the seasons pass me by

I know you were not new

That loved like me and you

All the same, I miss you

Today has been okay, today has been okay

https://youtu.be/Ac_87o0UWUg

On 30th June, Paisley will be 4. To honour her I am raising funds for Heartfelt, an amazing Australian charity of photographers who help the family to capture priceless memories of their children gone too soon. If you can, please consider supporting this outstanding organisation. 
https://www.mycause.com.au/page/127880/paisleys-4th-birthday